For those of you who went to the Wehonews.com site, thank-you. Page views are increasing there at a healthy rate and I like to think you're a part of that. But for those of you who waited, it follows a few paragraphs down.
I just got back from my regular doc. I am now going to a podiatrst have minor surgery on the toe this afternoon at 2. I was hoping to be totally put under, as the injection of local anesthesia in the toe is excruciating. (I know, I've experienced it--and I have a very high tolerance for pain.) Unfortunately, it turned out the podiatrist is finished with surgery for the year and I made the mistake of eating breakfast before he called me back so would not have an empty stomach by this afternoon.
He's seeing me even though the office Christmas party will be in full swing. I hope my screams don't put a damper on the proceedings. It reminds me of Kramer vs. Kramer when Dustin Hoffman lands a job interview on December 23rd.
Kronic Living: Men in White
Dec. 15, 2005 – Marc Olmsted, West Hollywood
Prepare yourself to see giant images of men in diapers looming over you as you drive through West Hollywood. It’s one of several images constituting a new campaign “HIV-Not Fabulous” launched by the AIDS Healthcare Foundation on December 6, highlighting the heavy toll AIDS treatments can take. Apart from diarrhea, lipodystrophy--in the form of facial wasting and bloated belly--is also being “advertised.”
The images are jarring, to say the least, and that, said Michael Weinstein, AHF’s President, is precisely the point: “Two weeks ago, the CDC announced that HIV incidence among gay men nationwide increased by eight percent in 2004. Almost twenty five years into the epidemic and despite years of prevention messages targeting gay men, our collective HIV prevention efforts and messages are simply not getting through.”
For a few years now, HIV prevention and treatment activists have been objecting to the images of happy-smiley men engaged in mountain-climbing and other robust pursuits that have characterized pharmaceutical ad campaigns for AIDS medications. (The necessity of such ads is arguable as it is, considering very few patients would consider themselves able to argue the merits of one med over the other to their doctors. Bloated ad budgets also increase the cost of the medications themselves) Add to that the use of steroids to combat wasting, which puff up the bodies of HIV+ men who 15 years ago would have been skeletons, and fuel has been poured on the fires of misconception.
Karen Mall, AHF’s Director of Prevention, puts it this way: “While we are grateful these medications have enabled those already living with HIV/AIDS to live longer and healthier lives, we believe it’s important that people see and hear the full story. There is more to living with HIV than a day at the beach: many people have physical, mental, financial and/or social hardships as a result of their illness. The ‘HIV—Not Fabulous’ prevention campaign is a deliberate effort to encourage an oftentimes high-risk population of gay men to protect themselves and stay negative.”
The drug companies have listened, up to a point. Much of the new advertising is comparatively muted. But certainly they cannot be asked—or expected—to publicize how debilitating some of their medications can be. Within the HIV-infected community itself, there is often a reluctance to discuss side effects as well, particularly to the HIV-negative who need most to be made aware of them. Like anyone else, and perhaps more than most, gay men want to be attractive to potential mates or to their social peers in general. No one is going to tell a hot date they have to cancel because they’ve got the runs from their new pill regimen.
Which is precisely what makes the men who have appeared in the ads so remarkable. They have all suffered from the effects being highlighted, and there is no mistaking what is being referenced. Across the board however, the models I spoke to were uniform in their desire to derive good from bad. Michael Margolis, who posed in a diaper, observed: “The younger generation of gay men don’t seem to get that this is still a toxic virus that requires toxic weapons to fight it. Whether it’s the HIV or what you take for it, the bottom line is that once you seroconvert, you will be adversely affected by this disease.”
Which illustrates the importance behind the website name chosen for the campaign “Staynegative.org.” The only real cure for HIV is still prevention.
In my opinion, the campaign is a giant stride forward in that it seeks to bring back a healthy fear of AIDS, even if it involves more of an appeal to vanity than dangling the specter of ill health or early death.
What the campaign doesn’t bring up, nor seeks to, is an argument I would like to see more widely promulgated. In my experience, I have yet to hear a gay man calculate into the equation the costs to society of his seroconversion. AIDS treatments are very expensive, and whether paid for by private insurance or public taxpayer, everybody pays. In a world in which there is so much unpreventable disease and suffering competing for the government or philanthropic dollar, it is veritably an act of civic responsibility to remain negative.
I think the consideration of this factor is practically non-existent because so many Americans, the at-risk-for-HIV and the young in particular, feel alienated from society as a whole, even while feeling entitled to its benefits. They don’t vote. They resent paying taxes. The government is thought of as “they,” not a function of “we” (the people). As gays, they feel socially marginalized, as young people, more preoccupied by their social lives than the communal good.
This is hardly confined to AIDS—witness smoking. How many of those who never start don’t because of the arguments about its social costs? (I can’t even get the smokers in my car to use my ashtray instead of tossing their butts out the window.) However, increased social disapproval of smoking seems to have made a real dent in how many people take it up or choose to quit.
In wanting to (rightly) destigmatize having HIV, we may have fallen prey to the law of unintended consequences. Getting HIV has lost much of its fear/disapproval factor as well. In not wanting to make those of us with HIV/AIDS feel bad about our status, the message has been diluted that being negative is better than being positive. Not morally better. But better health-wise, just as not smoking is better than smoking.
Staying HIV-negative needs to be encouraged, and supported, unequivocally. By that measure the “HIV—Not Fabulous” campaign is a welcome and necessary addition to the fight against AIDS.
To view the campaign images, go to staynegative.org.
MCO 2005